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Mento, C., Piraino, B., Rizzo, A., Vento, R., Rigoli, L., Moschella, E., Salpietro, C., & Settineri, S. (2015). Control afectivo y satisfacción con la vida en talasémicos. International Journal of Psychological Research, 8(1), 91–98. https://doi.org/10.21500/20112084.648
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The editorial board reserves the right of amendments deemed necessary in the application of the rules of publication.
To give up copyright, the authors allow that, International Journal of Psychological Research, distribute the work more broadly, check for the reuse by others and take care of the necessary procedures for the registration and administration of copyright; at the same time, our editorial board represents the interests of the author and allows authors to re-use his work in various forms. In response to the above, authors transfer copyright to the journal, International Journal of Psychological Research. This transfer does not imply other rights which are not those of authorship (for example those that concern about patents). Likewise, preserves the authors rights to use the work integral or partially in lectures, books and courses, as well as make copies for educational purposes. Finally, the authors may use freely the tables and figures in its future work, wherever make explicit reference to the previous publication in International Journal of Psychological Research. The assignment of copyright includes both virtual rights and forms of the article to allow the editorial to disseminate the work in the manner which it deems appropriate.
The editorial board reserves the right of amendments deemed necessary in the application of the rules of publication.
Resumen
Antecedentes: La Talasemia es una enfermedad crónica que puede conducir a un impacto en el funcionamiento psicológico y el comportamiento social de los pacientes. Sin embargo, todavía se sabe poco sobre los aspectos psicológicos específicos de esta enfermedad, tales como el grado de tensión, satisfacción con la vida y el control afectivo, sobre todo en pacientes adultos.Objetivo: El propósito de este estudio, es investigar si los pacientes con Talasemia tienen un patrón psicológico específico relacionado con las dimensiones de tensión, la satisfacción, calidad de vida y el manejo del afecto.Método: 31 pacientes con Talasemia mayor e intermedia fueron evaluados: (19 mujeres y 12 hombres) con edades entre 18 y 50 años (M= 34+16), pertenecientes a la Unidad de Complejo de Genética Médica. Para la evaluación fueron utilizados el Perfil de Estados de Ánimo (POMS), la calidad de vida: Satisfacción y placer (Q-LES-Q) y el test de Rorschach.Resultados: Los resultados muestran una relación inversa entre los niveles de tensión de auto-reporte y los indicadores de control afectivo en el test de Rorschach. La satisfacción con la vida, por el contrario parece variar según la gravedad de la enfermedad: major vs. intermedio - y el tipo de terapia.Conclusiones: la comprensión de los mecanismos psicológicos implicados en la talasemia, tanto en el auto-reporte como en lo proyectivo, puede contribuir a una toma de control más amplia del paciente, considerando los aspectos subjetivos relacionados con el bienestar psicológico y socio-emocional, fundamentales en el cumplimiento del cuidado.
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Citas
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R E S E A R C H
INTERNATIONAL JOURNAL OF PSYCHOLOGICAL RESEARCH Affective control and life satisfaction in Thalassemia
Mento et al. (2014) int.j.psychol.res. 8 (1) PP. 91 - 98
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Marzo, R. D., Dowling, C. E., Wong, C., Maggio, A., & Kazazian, H. H. (1988). The spectrum of β‐thalassaemia mutations in Sicily. British journal of haematology, 69(3), 393-397.
McNair, D. M., Lorr, M., & Droppleman, L. F. (1971). POMS: profile of mood states. Educational and Industrial Testing Service: San Diego.
Mento C., Galletti F., Galletti B., Longo P., Bitto E., Rizzo A., & Settineri S. (2014). Representation, Projection and Cochlear Implant: a single case study. Mediterranean Journal of Clinical Psychology, vol. 2 n. 1.
Messina, G., Colombo, E., Cassinerio, E., Cesaretti, C., Marcon, A., Zanaboni, L., Baldini M., Cappellini, M. D. (2010). Pregnant women affected by thalassemia major: a controlled study of traits and personality. Journal of research in medical sciences 15 (2), 100-106.
Messina, G., Colombo, E., Cassinerio, E., Ferri, F., Curti, R., Altamura, C., & Cappellini, M. D. (2008). Psychosocial aspects and psychiatric disorders in young adult with thalassemia major. Internal and emergency medicine, 3(4), 339-343.
Pakbaz Z, Treadwell M, Yamashita R, Quirolo K, Foote D, Quill L, Singer T, Vichinsky EP (2005) Quality of Life in Patients with Thalassaemia Intermedia Compared to Thalassaemia Major. New York Academy of Sciences 1054 (1) 457-461.
Palma, A., Vullo, C., Zani, B., & Facchini, A. (1998). Psychosocial integration of adolescents and young adults with thalassemia major. Annals of the New York Academy of Sciences, 850(1), 355-360.
Passi Tognazzo, D. (1994). Il Metodo Rorschach, Manuale di psicodiagnostica su modelli di matrice europea. Firenze: Giunti Editore.
Powell, W. N., Rodarte, J. G., & Neel, J. V. (1950). The occurrence in a family of Sicilian ancestry of the traits for both sickling and thalassemia. Blood,5(10), 887-897.
Rorschach, H. (1927). Rorschach Test – Psychodiagnostic Plates. Cambridge, MA: Hogrefe Publishing
Rose, T., Kaser-Boyd, N., & Maloney, M. P. (2001). Essentials of Rorschach Assessment. Essentials of Psychological Assessment Series. John Wiley & Sons, Inc., 605 Third Avenue, New York, NY 10158.
Sandler, J. (Ed.). (2012). Projection, identification, projective identification. Karnac Books.
Sandler, J., & Ackner, B. (1951). Rorschach content analysis: an experimental investigation. British Journal of Medical Psychology,24(3), 180-201.
Settineri S., Lo Presti E., Liotta M. and Mento C. (2013). Trauma and the Father Image: Fantasies and Complexes in the Rorschach Test. The Open Psychology Journal vol. 6 p. 1-5.
Shaligram, D., Girimaji, S. C., & Chaturvedi, S. K. (2007). Psychological problems and quality of life in children with thalassemia. The Indian Journal of Pediatrics, 74(8), 727-730.
Telfer, P., Constantinidou, G., Andreou, P., Christou, S., Modell, B., & Angastiniotis, M. (2005). Quality of life in thalassemia. Annals of the New York Academy of Sciences, 1054(1), 273-282.
Tsiantis, J., Dragonas, T. H., Richardson, C., Anastasopoulos, D., Masera, G., & Spinetta, J. (1996). Psychosocial problems and adjustment of children with β-thalassemia and their families. European child & adolescent psychiatry,5(4), 193-203.
Weatherall, D. J., & Clegg, J. B. (2008). The thalassaemia syndromes. John Wiley & Sons.
Zani, B., Di Palma, A., & Vullo, C. (1995). Psychosocial aspects of chronic illness in adolescents with thalassaemia major. Journal of adolescence, 18(4), 387-402.
Aydin, B., Yaprak, I., Akarsu, D., Ökten, N., & Ülgen, M. (1997). Psychosocial aspects and psychiatric disorders in children with thalassemia major. Pediatrics International, 39(3), 354-357.
Birgens, H., & Ljung, R. (2007). The thalassaemia syndromes. Scandinavian journal of clinical & laboratory investigation, 67(1), 11-26.
Bohm, E. (1958). A textbook in Rorschach diagnosis. New York: Grune & Stratton.
Bornstein, R. F., Bowers, K. S., & Bonner, S. (1996). Effects of induced mood states on objective and projective dependency scores. Journal of Personality Assessment, 67(2), 324-340.
Carbone, S. (2014). Thalassemia in Messina: a sociological approach to chronic disease. Thalassemia Reports, 4(1).
Daar, S., & Pathare, A. V. (2006). Combined therapy with desferrioxamine and deferiprone in beta thalassemia major patients with transfusional iron overload. Annals of hematology, 85(5), 315-319.
Dumitrascu, N. (2011). The Impact of Induced Mood on Visual Information Processing. The University Of Toledo.
Endicott, J., Nee, J., Harrison, W., & Blumenthal, R. (1993). Quality of life enjoyment and satisfaction questionnaire. Psychopharmacol Bull, 29(2), 321-326.
Galanello, R., & Origa, R. (2010). Review: Beta-thalassemia. Orphanet J Rare Dis, 5(11).
R E S E A R C H
INTERNATIONAL JOURNAL OF PSYCHOLOGICAL RESEARCH Affective control and life satisfaction in Thalassemia
Mento et al. (2014) int.j.psychol.res. 8 (1) PP. 91 - 98
Goldfarb, W. (1945). The Animal Symbol in the Rorschach Test, and an Animal Association Test. Rorschach Research Exchange, 9(1), 8-22.
Guasco, G., La Mantia, A., & Cuniolo, A. (1986). [Psychological problems of thalassemic subjects]. La Pediatria medica e chirurgica: Medical and surgical pediatrics,9(3), 269-279.
Jian-zhong, Z. H. O. U. (2003). The Cultural Connotation of Orchid and its Orientation of Personality in Confucianism. Southeast Culture, 7, 009.
Maggio, A., Giambona, A., Cai, S. P., Wall, J., Kan, Y. W., & Chehab, F. F. (1993). Rapid and simultaneous typing of hemoglobin S, hemoglobin C, and seven Mediterranean beta-thalassemia mutations by covalent reverse dot-blot analysis: application to prenatal diagnosis in Sicily. Blood, 81(1), 239-242.
Marzo, R. D., Dowling, C. E., Wong, C., Maggio, A., & Kazazian, H. H. (1988). The spectrum of β‐thalassaemia mutations in Sicily. British journal of haematology, 69(3), 393-397.
McNair, D. M., Lorr, M., & Droppleman, L. F. (1971). POMS: profile of mood states. Educational and Industrial Testing Service: San Diego.
Mento C., Galletti F., Galletti B., Longo P., Bitto E., Rizzo A., & Settineri S. (2014). Representation, Projection and Cochlear Implant: a single case study. Mediterranean Journal of Clinical Psychology, vol. 2 n. 1.
Messina, G., Colombo, E., Cassinerio, E., Cesaretti, C., Marcon, A., Zanaboni, L., Baldini M., Cappellini, M. D. (2010). Pregnant women affected by thalassemia major: a controlled study of traits and personality. Journal of research in medical sciences 15 (2), 100-106.
Messina, G., Colombo, E., Cassinerio, E., Ferri, F., Curti, R., Altamura, C., & Cappellini, M. D. (2008). Psychosocial aspects and psychiatric disorders in young adult with thalassemia major. Internal and emergency medicine, 3(4), 339-343.
Pakbaz Z, Treadwell M, Yamashita R, Quirolo K, Foote D, Quill L, Singer T, Vichinsky EP (2005) Quality of Life in Patients with Thalassaemia Intermedia Compared to Thalassaemia Major. New York Academy of Sciences 1054 (1) 457-461.
Palma, A., Vullo, C., Zani, B., & Facchini, A. (1998). Psychosocial integration of adolescents and young adults with thalassemia major. Annals of the New York Academy of Sciences, 850(1), 355-360.
Passi Tognazzo, D. (1994). Il Metodo Rorschach, Manuale di psicodiagnostica su modelli di matrice europea. Firenze: Giunti Editore.
Powell, W. N., Rodarte, J. G., & Neel, J. V. (1950). The occurrence in a family of Sicilian ancestry of the traits for both sickling and thalassemia. Blood,5(10), 887-897.
Rorschach, H. (1927). Rorschach Test – Psychodiagnostic Plates. Cambridge, MA: Hogrefe Publishing
Rose, T., Kaser-Boyd, N., & Maloney, M. P. (2001). Essentials of Rorschach Assessment. Essentials of Psychological Assessment Series. John Wiley & Sons, Inc., 605 Third Avenue, New York, NY 10158.
Sandler, J. (Ed.). (2012). Projection, identification, projective identification. Karnac Books.
Sandler, J., & Ackner, B. (1951). Rorschach content analysis: an experimental investigation. British Journal of Medical Psychology,24(3), 180-201.
Settineri S., Lo Presti E., Liotta M. and Mento C. (2013). Trauma and the Father Image: Fantasies and Complexes in the Rorschach Test. The Open Psychology Journal vol. 6 p. 1-5.
Shaligram, D., Girimaji, S. C., & Chaturvedi, S. K. (2007). Psychological problems and quality of life in children with thalassemia. The Indian Journal of Pediatrics, 74(8), 727-730.
Telfer, P., Constantinidou, G., Andreou, P., Christou, S., Modell, B., & Angastiniotis, M. (2005). Quality of life in thalassemia. Annals of the New York Academy of Sciences, 1054(1), 273-282.
Tsiantis, J., Dragonas, T. H., Richardson, C., Anastasopoulos, D., Masera, G., & Spinetta, J. (1996). Psychosocial problems and adjustment of children with β-thalassemia and their families. European child & adolescent psychiatry,5(4), 193-203.
Weatherall, D. J., & Clegg, J. B. (2008). The thalassaemia syndromes. John Wiley & Sons.
Zani, B., Di Palma, A., & Vullo, C. (1995). Psychosocial aspects of chronic illness in adolescents with thalassaemia major. Journal of adolescence, 18(4), 387-402.
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